Overview
Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
Contents
About the AAN Neurology Now Patient Book Series (Lisa M. Shulman)
Foreword (J. Eric Ahlskog)
Preface
1. Introduction
2. What Is It? Why Me?
What Is It? What Causes Parkinson Disease? What Are the Stages of the Disease?
Who Gets the Disease? Why Me? Is There Help? | The Outlook for Parkinson’s Patients
3. The Motor Symptoms
Tremor. Bradykinesia. Rigidity. Loss of Balance, Freezing, and Falling. Other Motor Symptoms. Motor Symptoms that May Occur as a Complication of Treatment.
4. The Non-Motor Symptoms
Sensory Symptoms. Cognitive Symptoms. Emotional and Psychiatric Symptoms. Sleep. Autonomic Nervous System Dysfunction. Skin Problems.
5. Diagnosis
Making and Verifying the Diagnosis. The Role of the Neurologist and the MedicalTeam. Frequently Asked Questions Regarding Diagnosis and Assembling a Team of Experts
6. How Will My Life Change?
Reacting to the Diagnosis. Seeking More Information. Frequently Asked Questions about How to Deal with the Diagnosis of Parkinson Disease. The Next Step.
7. Disease Management: General Principles,
Medications, and Surgery. What Are Our Weapons in Treating Parkinson Disease? What If I Don’t Want to Start Medications Right Away? Medications Brain Surgery for Parkinson Disease
8. Disease Management: Rehabilitation Therapy, Assistive Devices, and Adaptive Equipment
Physical Therapy. Occupational Therapy. Speech Therapy. Assistive Devices and Adaptive Equipment.
9. Disease Management: Specific Symptoms
Managing Tremor, Bradykinesia, and Rigidity. Managing Balance Challenges and Freezing of Gait. Managing Weakness and Fatigue. Managing Dyskinesia, Dystonia, and Wearing Off. Managing Speech and Communication Problems. Managing Excessive Salivation, Drooling, and Thick Secretions. Managing Swallowing Problems. Managing Vision Problems. Managing Difficulties with Bladder Control. Dealing with Loss of Mobility in the Advanced Stages. Dealing with Mild Cognitive Symptoms. Managing Confusion, Hallucinations, and Dementia. Dealing with Apathy, Depression, Impulsivity, and Anxiety. Managing Sleep Changes in Parkinson Disease. Managing Orthostatic Hypotension. Weight Loss. Keeping Skin in Shape. Hospitalization. Elective Surgery. Medications to Avoid .
10. Lifestyle Changes and Disease Management
The Importance of Exercise. Leisure Activities. Stress Management. Driving. Using Complementary Therapies. Spirituality. Travel. The Power of Music and Dance. Getting Involved in the Parkinson’s Community.
11. Research
Why Should I Consider Participating in Research? What Kinds of Research Studies May Be Open to a Person with Parkinson Disease? Informed Consent. Where Can I Learn More?
12. The Care Partner
Coping with Caregiver Stress and Fatigue. Planning for the Future. A Caregiver’s Story: Marilyn. A Caregiver’s Story: Rich.
13. Community Involvement, Advocacy, and Resources
A Passion for Advocacy. A Passion for the Arts and Helping Others. Find Out More.
14. Planning For Your Future: Managing Your Personal Affairs (Murray Sagsveen, and Laurie Hanson)
Your Emergency Notebook. Informal and Formal Arrangements. Durable Power of Attorney. Trusts. Health Care Directives. Guardianship and Conservatorship. Your Will.
Glossary
About the authors and contributors
Inde
Contents
About the AAN Neurology Now Patient Book Series (Lisa M. Shulman)
Foreword (J. Eric Ahlskog)
Preface
1. Introduction
2. What Is It? Why Me?
What Is It? What Causes Parkinson Disease? What Are the Stages of the Disease?
Who Gets the Disease? Why Me? Is There Help? | The Outlook for Parkinson’s Patients
3. The Motor Symptoms
Tremor. Bradykinesia. Rigidity. Loss of Balance, Freezing, and Falling. Other Motor Symptoms. Motor Symptoms that May Occur as a Complication of Treatment.
4. The Non-Motor Symptoms
Sensory Symptoms. Cognitive Symptoms. Emotional and Psychiatric Symptoms. Sleep. Autonomic Nervous System Dysfunction. Skin Problems.
5. Diagnosis
Making and Verifying the Diagnosis. The Role of the Neurologist and the MedicalTeam. Frequently Asked Questions Regarding Diagnosis and Assembling a Team of Experts
6. How Will My Life Change?
Reacting to the Diagnosis. Seeking More Information. Frequently Asked Questions about How to Deal with the Diagnosis of Parkinson Disease. The Next Step.
7. Disease Management: General Principles,
Medications, and Surgery. What Are Our Weapons in Treating Parkinson Disease? What If I Don’t Want to Start Medications Right Away? Medications Brain Surgery for Parkinson Disease
8. Disease Management: Rehabilitation Therapy, Assistive Devices, and Adaptive Equipment
Physical Therapy. Occupational Therapy. Speech Therapy. Assistive Devices and Adaptive Equipment.
9. Disease Management: Specific Symptoms
Managing Tremor, Bradykinesia, and Rigidity. Managing Balance Challenges and Freezing of Gait. Managing Weakness and Fatigue. Managing Dyskinesia, Dystonia, and Wearing Off. Managing Speech and Communication Problems. Managing Excessive Salivation, Drooling, and Thick Secretions. Managing Swallowing Problems. Managing Vision Problems. Managing Difficulties with Bladder Control. Dealing with Loss of Mobility in the Advanced Stages. Dealing with Mild Cognitive Symptoms. Managing Confusion, Hallucinations, and Dementia. Dealing with Apathy, Depression, Impulsivity, and Anxiety. Managing Sleep Changes in Parkinson Disease. Managing Orthostatic Hypotension. Weight Loss. Keeping Skin in Shape. Hospitalization. Elective Surgery. Medications to Avoid .
10. Lifestyle Changes and Disease Management
The Importance of Exercise. Leisure Activities. Stress Management. Driving. Using Complementary Therapies. Spirituality. Travel. The Power of Music and Dance. Getting Involved in the Parkinson’s Community.
11. Research
Why Should I Consider Participating in Research? What Kinds of Research Studies May Be Open to a Person with Parkinson Disease? Informed Consent. Where Can I Learn More?
12. The Care Partner
Coping with Caregiver Stress and Fatigue. Planning for the Future. A Caregiver’s Story: Marilyn. A Caregiver’s Story: Rich.
13. Community Involvement, Advocacy, and Resources
A Passion for Advocacy. A Passion for the Arts and Helping Others. Find Out More.
14. Planning For Your Future: Managing Your Personal Affairs (Murray Sagsveen, and Laurie Hanson)
Your Emergency Notebook. Informal and Formal Arrangements. Durable Power of Attorney. Trusts. Health Care Directives. Guardianship and Conservatorship. Your Will.
Glossary
About the authors and contributors
Inde